IN RECOVERY…

The Long Winding Road of Recovery
#FreeDerya @FreeDerya   https://www.facebook.com/freederya/
#FreeDerya @FreeDerya   https://www.facebook.com/freederya/

This morning was an early morning.  Derya was up unusually early, needing my attention.  Over the last two years, there are many things that I have come to hate.  Everyone knows it’s not healthy to hate, but you might understand. I hate the thought of her not having everything she needs.  I hate the sadness I see in her face. I hate the weakness she is forced to show because she was once so strong and powerful, astride her future as if no one would stop her.  

Most of all, when I think about how I change her bed, help feed her or do any of the other items of care she needs.  I hate to think about the helplessness I faced and I hate even more the feeling of loneliness she must have felt over two years ago as she begged me to come to get her from Bellevue.  I hate the fact that I couldn’t help her and stop the pain she was going through at their hands. But Bellevue isn’t alone.

The Long Road of Betrayal

Yes, Derya has a disease called Autoimmune Encephalitis.  And Yes, there are people who were responsible for making her condition worse.  The doctor who decided he wasn’t going to tell us about her Terratoma because he wanted us to come back for another $600+ visit, and kept quiet despite the professional ethics which dictated differently.  I accept that he has a right to earn a living, and he could have urged us to come in to review what he found – but he didn’t. My primary care doctor has called me in for a lot less after some blood work and tests, just to tell me my A1C had gone up half a point – a far less compelling reasoning than the source of my daughter’s disease.  His inaction – greed or incompetence at your discretion – cost Derya nearly eight months of suffering.

Then the other doctor who abandoned her after Bellevue, but not after he spent nearly fourteen months canceling appointments as his altering schedule due to his popularity impinged on his ability to care for patients.  His abandonment, despite his assertions “, to treat us as if we were family” as he said to us in an appointment. His actions are truly despicable. I fear for his own children if he treats them the same way.   These two contributed to the Long Road of Betrayal Derya has suffered.

Real Justice

And so, I have much anger.  But I have a strong belief in a higher power, a God that loves and cares for us and will bring us to the true justice – a Derya that is stronger than ever, fighting the good fight against the forces of evil and darkness which sought to trap and keep her.  As I right this now, Derya is looking at me as if she knows exactly what I am writing. Those looks of contemplation, staring and wonderment fill me with hope. To me, that’s her brain processing the world around her as she begins the long road back to recovery after a long road of betrayal, harm and outright attacks against her from undisciplined, ill informed and bad medical professionals who allowed evil to seep into their heart.  

And justice comes in her success.  Success despite the ogres of evil who stepped in the way, caused harm and interrupted her care.  These people will eat crow. They will to for the evil they have perpetuated.

About US!

James Baldini blogs about his daughter’s care and the tragedy that has surrounded the entire family of Derya Demirtas.  Derya has had Autoimmune Encephalitis for nearly four years now.  The young advancing, brave and stalwart young woman Derya Demirtas, has suffered much throughout that time.  As has her family and friends.  In someway we hope to see a change within the medical community so that it may better adapt to this disease and prevent future generations of victims.

You can read more from James Baldini @  www.JamesBaldini.com

#FreeDerya #JamesBaldini

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