Everyday A Blessing!

It was today, two years ago, that we were told by the administration of the Hospital that Derya would be confined at their hospital for another six months.  It was today, in a meeting with several doctors and social workers we had our hearts broken – again by this institution that “shall do no harm”.  Yet they did.

This picture is meant to identify just how important our Derya is to us.  This picture is Derya resting comfortably at home, after having a nice meal watching some television with her dad.  We took this picture just a few days ago, her vibrant beauty and smile shine through.

As you already know, it was five days after our meeting that the hospital released Derya to our custody.  Amazingly, it was only three days after this meeting that the hospital contacted us to arrange her pick up.   It’s hard to believe in our modern day that Robert Burn’s words, “Man’s inhumanity to man, makes countless thousands mourn.” isn’t just something from history, but active today.  Worse yet, it’s in the hearts of those we were supposed to be able to trust. As some Hippocratic professionals cause more harm and suffering while still, other doctors share in our suffering as their hands are tied as well, unable to change the outcome.

How can we make a difference?  Especially when we have no power. Certainly, we have those who have spoken up about this destructive disease.  And awareness is on the rise.  Yet, in the meantime, families suffer through caring for their sick child and we observe from afar, reliving our own nightmare as we still live within our own suffering. No pain is so great, nor suffering so much as to watch your child in pain and know that there is nothing you can do to take the pain away.  Despite our offers to God to replace us with our child, our pleas of mercy and hope for a brighter tomorrow.

And still, I hear my mother’s voice reading to me Robert Burns poem.

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